This picture (taken about 30 minutes before bedtime yesterday) pretty much sums up my mood and attitude about life the past few days…
Meh.Bleh.Ugh. And from my last few posts, I’m sure it’s obvious I haven’t really been in the best place lately. I’ve just been in a funk about Grayson’s stuff, and have had quite a few life isn’t fair and I’m pissed off about it moments.
Plus, I haven’t felt great and I strained my back, which wasn’t helping my attitude AT ALL.
Today, I’m feeling better, and feel the dark cloud lifting. I know feeling temporarily depressed just goes with the territory and is going to happen sometimes. And of course I have tons to be thankful for, along with some extra special blessings that have come our way the past few days…
For several weeks, we have been considering a school for Grayson for next year. The school is for students with severe developmental delays and medical issues. We actually visited the school on that crazy day we went to the toy library and Grayson was melting down the entire time. Apparently, his “interview” didn’t faze them, because they want him to enroll- ha! After emailing with the director of the school several times, I finally talked to her boss yesterday and found out Grayson will get a scholarship! He will go 3 days/week starting in August, which I believe will be great for BOTH of us!The school has a curriculum, a 1:2 teacher-student ration, and we will have access to private PT, OT, Speech, Music and Pet therapy. Definitely an answer to prayer.
We saw G’s neurologist today and got an explanation and a plan for dealing with his recent seizures. I can’t say enough good things about Dr. R. He held and played with Grayson for several minutes at the appointment (and he has glasses, so G was ALL ABOUT IT). After listening to my version of what’s been going on the past few days, Dr. R concluded that G is having seizures in his sleep and because the left side is weaker (as shown in a past EEG) it’s causing temporary partial paralysis of his left leg- that’s why it’s always the left side that he won’t put weight on. The clonus (feet shaking) is related. The solution for now: up his current medication and see if that makes a difference.
We have received several amazing gifts in the past few weeks from wonderful friends. Grayson loves his new stander we got from one of our Mito family friends! Our PT came today and adjusted it for us.
Thanks for bearing with me through my funk- hopefully I’m at the tail end of it and have positive days ahead!