We got the results of Grayson’s MRI this morning. Basically, they found something abnormal-he has a thin corpus collosum (you can google it) and is being referred to an endocrinologist because this could indicate a hormonal/gland issue. He also has Optic Nerve Hypoplasia, which can manifest itself anywhere from simply poor vision to mental retardation. And they have no way of knowing how Grayson will be affected. Niiicce.
But, as scary as the unknown is, I’m actually doing ok. I know God made Grayson exactly how he’s supposed to be and he will grow and develop just right for him. And I don’t know if I want to know right how all this is going to turn out. I have this precious little baby and I don’t want to limit him in any way because of some diagnosis.
This afternoon, we had our first therapy session with Ms. Jeanie from ECI. She was great- and put my little boy to work! No more laying around napping all day for him- we are doing Tummy Time Bootcamp. Right now, Grayson tolerates tummy time, for about 5 or 10 minutes. Then he screams like I am torturing him until I pick him up. Well, he’s just going to have to scream a little more. Ms. Jeanie wants him on his tummy all day long unless he is sleeping. She even wants me to carry him around in my arms on his tummy. She also wants me to keep him awake more during the day. And she claims this will help with his sleeping at night- fingers crossed she’s right- every 3-4 hours for 4 months now is killing me!
So, big day for us, and lots of information and homework assignments to process! We are both tuckered out!
|He’s going to have to build up his tummy-time endurance!|