We got the results of Grayson’s MRI this morning. Basically, they found something abnormal-he has a thin corpus collosum (you can google it) and is being referred to an endocrinologist because this could indicate a hormonal/gland issue. He also has Optic Nerve Hypoplasia, which can manifest itself anywhere from simply poor vision to mental retardation. And they have no way of knowing how Grayson will be affected. Niiicce.
But, as scary as the unknown is, I’m actually doing ok. I know God made Grayson exactly how he’s supposed to be and he will grow and develop just right for him. And I don’t know if I want to know right how all this is going to turn out. I have this precious little baby and I don’t want to limit him in any way because of some diagnosis.
This afternoon, we had our first therapy session with Ms. Jeanie from ECI. She was great- and put my little boy to work! No more laying around napping all day for him- we are doing Tummy Time Bootcamp. Right now, Grayson tolerates tummy time, for about 5 or 10 minutes. Then he screams like I am torturing him until I pick him up. Well, he’s just going to have to scream a little more. Ms. Jeanie wants him on his tummy all day long unless he is sleeping. She even wants me to carry him around in my arms on his tummy. She also wants me to keep him awake more during the day. And she claims this will help with his sleeping at night- fingers crossed she’s right- every 3-4 hours for 4 months now is killing me!
So, big day for us, and lots of information and homework assignments to process! We are both tuckered out!
|He’s going to have to build up his tummy-time endurance!|
4 thoughts on “Tummy Time Bootcamp”
Sorry to hear you got some (possibly) scary news back from the MRI. I admire your strength, courage and determination though, it truly is inspiring. I think you have exactly the right attitude, not wanting to limit him due to a diagnosis. He is very lucky to have such an amazing mother.Good luck with tummy time. Isa never loved it much either. One fun thing is to lay down and put him on your tummy, then he gets the exercise but also gets to see you!
awwh, he does look all tuckered out! i agree with the above post; you have an awesome attitude and it will do nothing but help things in the right direction.if it makes you feel better, i'm still getting up like every 3 hours all night here too (and it isnt b/c of too many naps during the day; my child hates naps). i hope her methods get you more sleep at night!
Wow, go Ms. Jeanie go…so impressed she already has a plan and assignments, super cute pic of him passed out on the boppy. For sure let me know if she suggests and more "stuff" that will help for his therapy…chances are we have it. :o)
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