This picture (taken about 30 minutes before bedtime yesterday) pretty much sums up my mood and attitude about life the past few days…
Meh.Bleh.Ugh. And from my last few posts, I’m sure it’s obvious I haven’t really been in the best place lately. I’ve just been in a funk about Grayson’s stuff, and have had quite a few life isn’t fair and I’m pissed off about it moments.
Plus, I haven’t felt great and I strained my back, which wasn’t helping my attitude AT ALL.
Today, I’m feeling better, and feel the dark cloud lifting. I know feeling temporarily depressed just goes with the territory and is going to happen sometimes. And of course I have tons to be thankful for, along with some extra special blessings that have come our way the past few days…
For several weeks, we have been considering a school for Grayson for next year. The school is for students with severe developmental delays and medical issues. We actually visited the school on that crazy day we went to the toy library and Grayson was melting down the entire time. Apparently, his “interview” didn’t faze them, because they want him to enroll- ha! After emailing with the director of the school several times, I finally talked to her boss yesterday and found out Grayson will get a scholarship! He will go 3 days/week starting in August, which I believe will be great for BOTH of us!The school has a curriculum, a 1:2 teacher-student ration, and we will have access to private PT, OT, Speech, Music and Pet therapy. Definitely an answer to prayer.
We saw G’s neurologist today and got an explanation and a plan for dealing with his recent seizures. I can’t say enough good things about Dr. R. He held and played with Grayson for several minutes at the appointment (and he has glasses, so G was ALL ABOUT IT). After listening to my version of what’s been going on the past few days, Dr. R concluded that G is having seizures in his sleep and because the left side is weaker (as shown in a past EEG) it’s causing temporary partial paralysis of his left leg- that’s why it’s always the left side that he won’t put weight on. The clonus (feet shaking) is related. The solution for now: up his current medication and see if that makes a difference.
We have received several amazing gifts in the past few weeks from wonderful friends. Grayson loves his new stander we got from one of our Mito family friends! Our PT came today and adjusted it for us.
Thanks for bearing with me through my funk- hopefully I’m at the tail end of it and have positive days ahead!
11 thoughts on “Getting Over It”
I think G is much like you and doesn't hide his feelings well. ha! I shouldn't be laughing at that first pic….poor little dude! Praying the new meds dosage helps. Glad the cloud is lifting….here's to sunnier days ahead!
Why can't we be so cute when we look exhausted and just done!? 🙂 Hugs to you.
Hooray for the good news about school and the new stander for him to use. I think the school is going to be AMAZING and great for both of you. Glad the cloud is lifting, and the days look brighter!
sending a big hug!! there is nothing wrong with funks. you have so much weight on your shoulders 24/7. the school sounds awesome [yay scholarship]!
Hi friend. You won't believe that I have hurt my back too. BAD. How much more alike could our lives really be?! Hang in there. Praying for you…
Oh Elizabeth. My heart goes out to you. I can't imagine trying to overcome all these constant challenges with a brave face and a smile. You constantly amaze and inspire me with your strength and determination. Everyone is going to have rough days (or weeks, or months). As you said, it goes with the territory. I wish it didn't but I guess that is life, especially when you are fighting a constant uphill battle.I'm glad you posted again, but always feel free to take as much time as you need.And congrats on the school scholarship! It sounds AMAZING and I'm sure it will do wonders for both Grayson and his amazing mama!Also, you may never apologize for not commenting on my blog again, understood?! 😉
Grayson is such an adorable boy if I haven't said it before! It's hard to believe that anything could be wrong with such a perfect little boy. The school sounds like a huge blessing for both you and him. And he'll have great resources to help him out developmentally and you'll get a break. Which we ALL need.I'm glad the clouds are lifting and hope things continue to look up for you and your family.
Wow – I am so excited for you about G's school scholarship! What a wonderful thing for both of you! Gosh, I am sorry to hear about his seizures and their frequency. It just makes me sad for him (and you) – because as I've stated in the past – it just can't be easy for either of you. I hope the increased meds help.I bet he LOVES having his very own stander at home! Hooray!
Highs and lows – what a roller coaster! I've been praying so hard for the school situation to work out. What a blessing!
Oh I'm such a baby today. This post made me smile and cry. I am so happy that he will be able to attend that school! That is truly amazing and I'm sure he will excel and be happy there. Glad the doctor is giving you some help and answers. Hope it all keeps up. *hugs*
I hate times like that when you just can't pull out of a funk. I am glad to hear you are getting out of it. That is so exciting about the school!!! I am also excited about the photo I just saw on facebook!