Grayson has gone to bed before 5:30 the past two nights, and slept more than 13 hours. Usually I put him down right at 6:00, but by 5:00 yesterday and today his body language was begging me to put him to bed. As soon as I lay his body on that mattress, he was out.
He’s also been really difficult to take out the last few weeks. We had 3 playdates this week, and each one Grayson lasted about an hour and he started melting down- thankfully, I am in tune to his meltdown cues and got him out before things escalated too badly. Yesterday though, was really difficult- we went to the toy library with our OT, which was great, but Grayson was pretty hysterical the whole time we were there. And he couldn’t be calmed, which concerns me. This morning we had his 18 month well-check (nothing remarkable to report) and he was actually fine during the appointment, but he crashed in his crib for over 2 hours as soon as we got home.
Yes, he’s teething, and I realize that could be a big part of this, but I am worried it’s more than that. Toddlers (which I realize G is in age only) are supposed to get easier in terms of taking care of them, right? I feel like this is one of the hardest stages right now- G just seems SO tired and fussy so much of the time. His little legs are so stiff and it’s hard to get him in a position to play with his toys, and then his attention span with them seems minuscule. THANK GOD for his excersaucer and Veggie Tales music- Bob and Larry put a smile on his face (and save my sanity) each and every day.
My mind always goes to Mito- if indeed that ends up being his diagnosis-fatigue is a huge part of the disease and the impact on his life will be huge- I’m already seeing that. In a few weeks, the UMDF is having a day at a special needs amusement park in San Antonio. At first, I was thinking how fun it would be to take G. But then I realized- 3 hours in the car and then a day at the amusement park with no nap in his crib would equal disaster. The kids needs his sleep- in HIS bed- or he simply does not function.
I just feel so heartbroken for Grayson. Some days his struggles just seem so big. No wonder he’s tired.