Life Lately

I have barely written here this year, and I miss this space. The truth is, I’ve had quite the vulnerability hangover for months now and every time I sit down to write something vulnerable here, I just chicken out. Perhaps that’s for the best though, at least right now. But, there is quite a bit going on, both mundane and meaningful, and I wanted to document it here, if only for my future memories.

THANK GOD IT’S FINALLY SPRING. Seriously, I have never been so aware of how the change of seasons affects my mood, and my children’s moods. With the warmer weather (but not a billion degrees yet), we have been outside constantly, and am loving it. Charlotte got a new bigger bike, and Nolan learned to pedal, so they are zipping around the cul-de-sac hours a day with our neighbor besties.
I have been writing quite a bit over at Houston Moms Blog. Speaking of vulnerable, I wrote a piece a few months ago that got a lot of attention and inspired some really good conversation. It’s titled Why I Won’t Raise My Children in the Purity Culture That Raised Me. And, as I do, I have totally deep-dived into the topic since then and have already written part 2, 3, and 4 in my head (only half kidding). There are SO many layers to this issue and how it’s impacted my life. The good news is I’ve discovered I’m not alone- there is a whole community of people who are questioning the purity culture that raised them.
I have a new nephew! Baby Leo was born last week to my brother Peter and his beautiful wife Janice. He was born 8 weeks early, so has a long road in the hospital ahead, but he is doing as well as he can being so premature. They are in Australia and have never felt farther away. I can’t wait to hold this little guy when they come visit next fall.

Last weekend, I participated in my first political protest/rally: March For Our Lives Houston. I (a mother with small children) marched with my parents, my parents’ pastor, a 4 year old, a 16 year old high school student, and a good friend and her son who was the March coordinator for his high school. This little group represents the reach of this particular issue: people from all ages and stages of life are affected and want change. The issue of gun control is really nuanced: we can debate all day long about the 2nd amendment and an individual person’s right to own guns, and which guns. Most of the people marching yesterday don’t want to take away that right- we just want laws in place to ensure that a person’s right to own a gun doesn’t supercede our children’s right to attend school without the threat of being murdered in their classrooms.I realized after the March that not only do gatherings like this give us an opportunity to exercise our 1st amendment right, but they also allow us to (literally and figuratively) bump up against people of all different walks of life. There were Christians, Muslims, and atheists, old and young, conservatives and liberals, students and teachers…all packed in tightly on the streets, yet walking peacefully. It was a really profound experience. Since one of my platforms has been getting people to think about what the term “Pro-Life” really means, I decided to make my sign with that in mind:

I realized I never wrote here about our appointment with Grayson’s Mito doctor to discuss his genetic results. We already knew the basics from our visit with his first neurologist, but found out that he is only the 12th person in the world to be identified with the gene defect, and the only in the US so far. He will still be treated at the Leigh Syndrome clinic, and we can still identify him as having Leigh Syndrome, although it’s not classic Leigh. We had the little kids’ blood drawn last week to test to see if they are carriers, and we’ll get those results in about 6 weeks. They were rockstars for the blood draw (poop emoji band-aids and lollipops helped a lot).
Grayson gave us a real scare on Monday. I was pulling into work and got a call from his principal that he had just had a seizure and that they had called 911. Apparently during the seizure, somehow his airway had gotten completely blocked and he had no oxygen and turned blue. Both the school nurse and principal told me later that it was the worst/scariest seizure they had ever seen (not the seizure itself, but the blocked airway). Thank goodness, when they paramedics got to the school he was breathing again and checked out ok. We took him home and I held him most of the rest of the day. He has been fine the past two days, but I know everyone involved is still really shaken up. Grayson’s PT wrote an amazing guest post for Houston Moms Blog today about her job and included Grayson in her post.